I am back from a quick trip to Portland to visit a GIST
specialist and had my first scan done to look for progress. While I await the
next steps for my treatment plan, which is obviously both stressful and scary,
I decided to share with all of you some of the “lighter” moments I’ve been able
to find over the past eight weeks. I think, personally, I’ve made a lot of
progress in accepting and understanding my diagnosis over the past couple of
weeks. Humor has always been my to cope with tough situations and this is no
different. Everyday is still hard, but hey—at least it doesn’t suck 100% of the
time any more.
1.) I get to eat whatever I want every day.
If you know me, you know I am literally always on a diet. Whether it’s a
juice cleanse, paleo or simply “this is LIKE pizza but the crust is made from
plantains and flax seed and only has 112 calories in it…”; it is always
something. I even won an award from MyFitnessPal in 2014 for being in the top
10 food loggers for the year (still proud). In any event, cancer has made me
really skinny. Like, skinnier than I can remember. I believe I weigh a whopping
40 pounds less than I did on my wedding day—this is not a good thing by the
way. First, I look ridiculous. My head is huge and my arms are skinny and my
gut protrudes because my liver is enlarged. Second, when you have cancer, you
can’t control many things, but nutrition is one of them and if your body is
going to fight side effects or have surgery, you need a little extra padding,
which I now have none of.
Because I’ve been so nauseated, fatigued, depressed and just lacking of
all appetite-- when I do want to eat, I get to eat literally whatever I want
whenever I want. Unfortunately, cancer has not refined my taste buds. My
primary food groups include frozen breakfast pizzas, Twizzlers, Pringles,
edamame and Cream of Wheat. I will say I’ve recently been on a Nutty Buddy
kick—you know those Little Debbie wafer things? Yeah, I haven’t had one since
childhood, but I had a dream about them and woke up wanting one and have been
binging on them since. Rest assured, both my mother and John also force-feed me
nutritious items and a healthy serving of Ensure protein supplement drinks
every single day to supplement.
2.) My feet are literally never cold.
I have always been a person whose feet get icy cold. I
usually just put them directly onto my husband to warm them up, but since my
diagnosis, I’ve received more than 20 pairs of the cutest, fuzziest, warmest
socks in care packages from friends and family. I’m working my way through them
slowly. Many of them feature cats. Meow. Cold feet, no more!
3.) I have a lot of time on my hands to discover the best of YouTube
I am on a leave of absence from work and both my mom and
John work during the day, which leaves me on my own for entertainment during
the day. I’ve already watched 8 seasons of Unsolved Mysteries, all of the alien
documentaries and everything else of interest on Netflix, so I moved onto
YouTube one day when I was bored. Things get pretty crazy on there. However, I
will share with you only my best find: Aca-Taco Bell. How did I ever live
without this in my life?
4.) Over $1200 has been donated to Planned Parenthood in my name
When I was first diagnosed, everybody wanted to know what to
do, what to send, how to help—which is amazing obviously and I am very blessed
to have those people in my life. Because I am a woman of privilege, despite
cancer, I asked my parents, husband and close friends to tell anyone who asked
(after a certain point) to make donations to Planned Parenthood in my name, so
women who lack access to affordable health care can continue to get the help
they need. While I can’t be sure of the exact total, if each person I received
a donation thank you card in the mail from donated at least $10, then at least
$1200 has been donated. I hope this can make a small difference, despite the
politicians who threaten to defund PP daily.
5.) Not a day goes by that I question the love from friends, family, acquaintances near and far.
Not that I ever questioned it, but when you have cancer,
allies come out of the woodwork from the strangest places. My friends dropped
what they were doing and booked flights to sit on a couch with for an entire
weekend. Andrea even took a greyhound bus to Phoenix in the middle of the night
when her flight got cancelled—that’s true love y’all.
People sent gifts, texts, cards, prayers, e-cards and all of
their love. I received messages of love and hope from people I have never met,
who only know my family. My co-workers continued to check in on me, read my
blog, send gifts and flowers—they have gone above and beyond what co-workers
are required to do when someone gets sick amongst them. I wake up daily to text
messages of inspiration and strength from Kimberly, my beloved partner in all
things work (also known as the person I like to “wake snakes” with).
I’ve never been one to lean on anybody, but now that I need
to do so—literally every single person in my life, and so many more, have shown
up and put out their hands to help hold me up.
Great post Nikki. Glad you've been able to find your silver lining. Such nice sentiments to your close friends and those all concerned and following your posts. I hope the fork is useful too. Not sure you can eat a Pringle or a licorice stick with it. Ha.
ReplyDeleteWe're thinking of you daily and wishing you nothing but good health.
Jenn
Your continued courage and perspective enlighten all of us, Nikki, Thanks for making a difference for women and families in this unexpected way. Thanks also for the "shout-out" to your co-workers. Kimberly educated me on the meaning of "wake snakes." Sending healthy energy and love your way!
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